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Published: 2010-03-15 22:15:02 +0000 UTC; Views: 1443; Favourites: 11; Downloads: 6
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He walked into the restaurant late as usual; I eyed him for a minute then motioned him over. He was talk maybe six one with long black hair, he sat down and said"So"
"So…" I repeated unsure of where he was going.
"What is it like?"
I looked at him bewildered, "What is what like?"
"Living with Cerebral Palsy, after all I don't have it" he said as he ordered his usual drink, a coke with no ice, I turned to the redhead that was serving us and ordered a Dr Pepper, my usual don't ask if you don't like it you don't have to. I looked him in the eye and said:
"You got your giant key ring?"
"Yes, why?" he asked as he produced it from his pocket. He worked as a janitor and this was really the only way to explain it.
"Take all the keys off for me set them on the table" I said sipping my doctor pepper and looking around the restaurant. It was rather simple and I can't remember it's name but I knew I liked the pasta there, he had asked me there for this discussion, a discussion I've had plenty of times, and really didn't know how to discuss. Let me back up here and tell you, Cerebral Palsy is really a blanket term for born with brain damage, I almost died when I was a kid; my lungs collapsed because they were that of a three month old premature baby. I'm not premature but my lungs were. They still don't know why. Anyway, basic terms it's like being born with damage on the brain due to lack of oxygen to it; it also comes with muscle problems and causes me to react late.
He took off all his keys; I counted twenty three in all. I looked at him and said, "Having cerebral palsy is like this, you see your keys?" he nodded as I continued "Now, each key is for an action so let's go through your day."
"Ok, I get up" he counted off a key "I take a shower" he counted off another key and I stopped him.
"No no you're skipping steps" I started to tick off keys "you wake up, you have to raise your body up" I counted off two keys, "then you have to move from the bed to your shower, each step is a key" I kept counting off keys, adding three keys to the pile of two we had, I was guesstimating because I didn't know how large his room was I knew it took me three steps to get to the bathroom so I took three keys, "Then you make breakfast and eat it" click, click, click more keys, "then you eat it" a key for each spoonful. He saw that the keys were dwindling as we talked about walking and exercising. I stopped when we got down to three, "so now you see the physical toll, that's the hardest part of it. The mental toll is easy to get past though it's a funny thing too", I walked him over to a bar and ask the tender to flip the TV on to static, both of them looked at me, "just do it please, I'm trying to give him an example of something"
The TV clicked onto static and I said, "now try living with that in your head all the time not just the sound by the feel of static, like two wires misfiring" he nodded, "every day I wake up and it feels like there's actually literally static on my brain" I continued and he raised his eyebrows. I shrugged, "the keys were the physical part of that, but at the same time you have the mental part, it's like living in a fog all the time, so now do you get it?"
He nodded and we walked back to the booth, I concluded by saying "Every day I
have to ask myself if this is worth doing, every day I have to make myself do it and I have to push myself, I go through more thoughts in a day than more people in an hour, that's what it's like."
He nodded understanding now dawning on his face. I really do hope that me writing this helped you reader, because I don't know any other way to explain it
Related content
Comments: 34
EquestrianStrong [2014-07-07 00:14:33 +0000 UTC]
Oh my gosh, ihave soastic diplegia and this COMPLETELY describes how i feel on a daily basis, my friends see me as normal, but they know i have trouble with things, i dont have a super severe type of CP (mild spastic diplegia) so i can do a lot they can do, until it gets to physical things, i cant run like them, let alone walk the way they do, but i can do it, and somwtimes i think they forget i have cp, so when i really CANT do something they dont alwYs realize that i need their help todo it, but when they do or when i tellthem i need help, they are there for me. This peice is so amazing, its so accurate to what its like living with CP, i love it.
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shadowsofthought In reply to EquestrianStrong [2014-07-07 02:23:33 +0000 UTC]
Thank you, it's always nice to hear from other people with Cerebral Palsy, especially on this piece.
I completely understand and it's good that you have friends who help you, I know that was the hardest part of my teenage years, now that i'm older it's a bit easier to get people to understand, though it can be frustrating at times. I'm glad my piece touched you and thank you for the watch.
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EquestrianStrong In reply to shadowsofthought [2014-07-07 03:12:34 +0000 UTC]
No problem! This peice is amazing and will always be one of my favorites ive ever seen here on DA. The analogy about the keys was perfect!
if you dont mind my asking, what type of CP do you have?
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shadowsofthought In reply to EquestrianStrong [2014-07-07 03:14:51 +0000 UTC]
Spastic hemiplegia left side
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EquestrianStrong In reply to shadowsofthought [2014-07-07 03:17:24 +0000 UTC]
I see, i have soastic diplegia, so its mainly legs and some arms but very little compared to qaudrapkegia.
Im gonna start sounding like an interveiwer with a million questions, and i dont wanna spam this, so do you mind noting me so i cansend the question?
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Tzadikim [2013-04-08 19:56:37 +0000 UTC]
As someone with Spastic CP, this story reminds me of me before my surgery. I hated being exhausted all of the time, and you captured that perfectly.
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shadowsofthought In reply to Tzadikim [2013-04-09 08:43:11 +0000 UTC]
Sorry for the late reply but what type of surgery did you have? Also thanks!
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Tzadikim In reply to shadowsofthought [2013-04-10 00:45:08 +0000 UTC]
Lengthened the hamstring in my left leg.
Amazed how quickly it took for me to hate the wheelchair. :-/
Anytime, it's rare that I find anything prose with CP in it.
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shadowsofthought In reply to Tzadikim [2013-04-10 01:57:48 +0000 UTC]
Oh I know how rare it is. And I've had that same surgery. Also had a derotationostyotomy. Fun times
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Dragonnerd445 [2013-04-03 06:03:40 +0000 UTC]
Wonderful description of what CP is like. Not many people realize just how exhausting every day activities are for us.
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shadowsofthought In reply to Dragonnerd445 [2013-04-04 00:58:38 +0000 UTC]
A fellow dragon AND someone with Cerebral Palsy? I think i'm going to reach through the computer and hug you XD Thanks for the kind words
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Dragonnerd445 In reply to shadowsofthought [2013-04-04 01:26:28 +0000 UTC]
You're very welcome.
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Stitchthebest36 [2012-08-06 18:35:55 +0000 UTC]
In case it wasn't clear from my first comment I have CP too.
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shadowsofthought In reply to Stitchthebest36 [2012-08-14 22:07:02 +0000 UTC]
I figured that out from your comment but thanks all the same I'm glad this seems to have helped some people
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Stitchthebest36 In reply to shadowsofthought [2012-08-18 18:48:38 +0000 UTC]
You're welcome. Yeah it helped me and a friend of mine.
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Stitchthebest36 [2012-08-06 18:33:28 +0000 UTC]
Awesome explaination of Cerebral Palsy. I thought I was the only one who felt like my brain had static in it 24/7. Why don't people get how much effort it takes for every movement? I wish able bodied could feel what I feel so they would know.
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Diglette [2011-04-08 05:51:57 +0000 UTC]
I've been there, too. Borderline Personality is like that too, but instead of paying keys for physical actions, you pay them for mental actions. If you want to get up when your alarm clock goes off, you pay three keys. If you wait another hour, you only have to pay two to decide to get up and deal with life, but you may get yelled at, and dealing with being yelled at without freaking out at Mom is another two. If your cat puked on the floor, that's another one for the frustration of having to clean it up, one for the irritation of cleaning it off your foot, and two to push past the random anger that shows up if you spend too many keys at once. I say you pay keys for that because every time you get that feeling leaves you a little less able to deal with life. It's a count-down, and you can run out of keys here, too. If you run out, you're done, and you are emotionally unable to handle even talking to your family, or coming out to dinner, or brushing your teeth.
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AngelMitskano [2010-03-16 21:14:30 +0000 UTC]
Hmm.... Interesting.
Doesn't it bother you if people ask you about it? I mean, I guess it's okay to know if one has it or not, but for someone to ask you what it's like?...
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shadowsofthought In reply to AngelMitskano [2010-03-16 21:56:04 +0000 UTC]
It does and it doesn't. I understand the curiosity that people have about it, I won't fault anyone for asking its how they ask that bothers me, if they are someone I've never known and they ask me, yeah it bothers me. But, when i get to know someone i'm up front about everything i am I know it may sound strange but i'm an old soul really
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AngelMitskano In reply to shadowsofthought [2010-03-17 16:00:34 +0000 UTC]
Nah. It doesn't sound strange. It makes sense when you put it that way.
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YourLoveIsEnough [2010-03-16 14:14:38 +0000 UTC]
I know somebody who's baby daughter has Cerebral Palsy. I didn't really understand it until I read this
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shadowsofthought In reply to YourLoveIsEnough [2010-03-16 14:59:38 +0000 UTC]
I can't say that it will effect her exactly the same way, but it's the best I can explain, thank you.
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starlightfire [2010-03-16 04:28:10 +0000 UTC]
*hugs* Definitely deep hon. People have asked me before what it is like living with my different health issues. And to be honest, I am not sure what to tell them. Some of them I have had my entire life, so I have no idea what it is like to live withOUT them.
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emonekokat [2010-03-15 22:22:58 +0000 UTC]
...I'm sorry...I don't know what it's like having Cerebral Palsy, but I know what it's like to go around every day with this feeling in your head that can only be described as wrong...
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shadowsofthought In reply to emonekokat [2010-03-15 22:25:41 +0000 UTC]
You don't have to understand it, thats why i explained it.
Trust me I know what you feel like too hun, it's hard to describe alot of things
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emonekokat In reply to shadowsofthought [2010-03-15 22:39:00 +0000 UTC]
yeah...the best way I can describe depression is like your brain is not quite attached to the rest of you, and you float through the day like a ghost...and before you know it a day is gone...a month...a year...
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shadowsofthought In reply to emonekokat [2010-03-15 22:41:02 +0000 UTC]
yeah that's what depression is like
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Lady-Rorschach [2010-03-15 22:19:46 +0000 UTC]
SOunds like me too! CP people of the world unite!
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shadowsofthought In reply to Lady-Rorschach [2010-03-15 22:22:01 +0000 UTC]
START A REVOLUTION!!!!!!!!!!!!!!
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